D learning about her procedures.
When the doctor came in this morning he informed us he had ordered one more test of her bladder. The test would be a contrast test to show him the exact capacity of the current bladder as well as some other measurements. The test today would save time during surgery tomorrow.
I was very nervous because I have taken D to similar testing before and it did not go well at all!! I told them I didn’t think they could do it without sedation. He wanted to go ahead and try it. I was allowed to stay with her and boy was I praying! The procedure went amazingly well! We felt your prayers in a big way. I was so relieved and encouraged.
A couple of hours later the doctor came in to explain the test results. Just when I thought this procedure couldn’t get more complicated, it got a lot more complicated! I won’t go into all the detail because, frankly, I don’t understand it all. The doctor was able to see the current bladder is much smaller than it first seemed. Because of D’s birth defects almost every organ she has is underdeveloped and because of all the surgeries those organs required just after birth, she has quite a bit of scar tissue.
When the doctor walked out of the room it took all I had to hold myself together. The amount of physical problems that D has seems insermountable. I feel like every time the doctor walks in he has more complications for us, more scary problems and more risks. It’s overwhelming. It’s paralyzing. I don’t feel like I should be the one making these decisions. I struggle and question why God picked us to help her through this. I feel so inadequate.
Then I look at her…sitting up in bed surrounded by pink blankets, pink pillows and pink stuffed animals bouncing and giddy because she just found out she is having popsicles for breakfast, lunch and dinner today. She is so happy, gigging every time I glance at her. To look at her you would never know she is has SO many medical issues on the inside. You would never know where she came from and what she’s been through.
I know that God picked us because we need her in our lives just as much as she needs us. God is teaching us and stretching us in ways we never thought possible. I am so thankful that God found us for her. I know God has big plans for her and I want to always be around to see what He does in her life.
Thank you for loving us and supporting us in prayer.
Surgery is scheduled to start at 7:30 in the morning.